Flu Shots and IBD: Why You and Your Loved Ones Should Get One

Flu Shots and IBD: Why You and Your Loved Ones Should Get One

I don’t like writing posts where I tell readers what they “should” be doing. I’m not a doctor, and everyone’s situation is different. I prefer to share my experiences and hope they help someone else going through something similar.

But flu shots are different.

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Dealing With a Fistula Amid Major Life Changes

Dealing With a Fistula Amid Major Life Changes

I haven’t posted in awhile because it’s been a very busy summer (and now fall). I moved from DC to Boston at the beginning of August. It’s something I had been thinking about doing for the past several years, and I spent a LOT of time worrying about how moving with a chronic illness would work. I spent hours obsessing over how to navigate a move and possible change of job and health insurance without delaying any Entyvio infusions.

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Fecal Matter Transplants: Link Round-Up

Fecal Matter Transplants: Link Round-Up

I’ve been curious about fecal matter transplants (FMT) since I first read about them a few years ago. As the name suggests, a fecal transplant is a procedure where stool from a healthy person is transferred to a sick person. It has been used as a treatment for Clostridium difficile (c. diff), a bacteria that can take over your intestine, and is increasingly being studied for the treatment of inflammatory bowel disease.

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How I Decided to Start a Biologic

How I Decided to Start a Biologic

I’ve always been scared to take medication. I’m the kind of person who reads all of the side effects and then imagines I have all of them. When I was first diagnosed with ulcerative colitis, my gastroenterologist prescribed Rowasa enemas and then Colazal. I was scared to take those, even though I’ve since learned that they are among the mildest medications used to treat IBD.

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Entyvio Connect, Revisited

Entyvio Connect, Revisited

One of the most popular posts on my blog is one from last year, A Guide to Using Entyvio Connect. I guess that isn’t surprising, since I wrote the post after experiencing much confusion and inconvenience trying to get Entyvio Connect to reimburse my health care provider for the cost of my Entyvio infusions. I’ve been meaning to update that post after having been through the process again this year, but I’ve been dreading it. I wish I had better news, but it was just as dizzying this year.

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A Guide to Using Entyvio Connect

A Guide to Using Entyvio Connect

I have spent many months trying to figure out how to get Entyvio Connect, a patient assistance program for individuals on Entyvio, to reimburse my health care provider for the cost of the medication for my infusion in January. It has involved many phone calls to my provider and to Entvyio Connect to get it all sorted out. But I finally did! Here is a guide to how it works.

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Surviving a Cruise on Immunosuppressants

Surviving a Cruise on Immunosuppressants

A few months ago I said I would post soon about the cruise I was going on and Entyvio Connect. Well, I still haven’t completely figured out Entyvio Connect, but I did survive the cruise! It didn’t go perfectly smoothly, but I did get through it without any major incidents

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