Why We Need a Patient Financial Bill of Rights

I thought this opinion piece in the New York Times about why we need a financial bill of rights was interesting. I’ve written before about finding it impossible to find out what a Remicade infusion would cost before I had my first infusion and the difficulty I’ve encountered when trying to use patient assistance programs like Entyvio Connect. Dr. Rosenthal, the piece’s author, notes that patients have a right to “ask for an estimate of hospital charges before care is provided,” but not to actually receive one.

She suggests nine rights that should be included, such as the right to never receive a surprise out-of-network bill, the right to be informed in advance about any facility fees, and the right to be informed of cheaper options.

What else would you include in a Financial Bill of Rights for patients? Have you encountered any of the issues she mentions?